News Keeps Getting Better and Better - 04/16/2012

It's been awhile since I've blogged... mostly because there is not much going on.  Well, there has been a few things going on like having an MRI last Tuesday and Kurt returning to work last Monday.  He took today off to go to my oncology appointment with me. 

My doctor came in and said "Good news!"  She let us know that the MRI showed no new brain tumors and the tumors that were there have gotten smaller.  I cannot say for sure how many tumors there are because as she told us, depending on which radiologist reads and reports, they might report it differently.  So, the plan for now is to stay on Temodar chemo pills (starts again tonight) and see her again in a month.  I won't have a PET scan until June and MRI probably 3 months from now.

I had a long list of questions:

- GOING BACK TO WORK:  If I am feeling well enough to, she is fine with me going back to work.  I am going to talk to my boss about going back. 

- DRIVING:  I asked about when I could drive again.  It's getting harder and harder for me as I want to go places.... but she informed me that she would say that I shouldn't plan to drive again unless it's an emergency.  She said that while they say 6 months seizure free, they don't know what is happening with my brain and I could have a seizure at any time.  While I am quite bummed about it, I do understand!

- LIFTING:  Funny how I was told I couldn't lift when I had my surgery last May and never really did ask if I could lift so today I asked if there were any restrictions.  The doctor just said that I need to not lift heavy stuff with my left side as I have the mediport in that side of my chest.

- STEROID MEDICATION:  I was hoping to ween off the steroid medication I'm on as I notice some arm/leg twitching, gaining weight/retaining water (UGH) and wanting to eat constantly, being irritable most of the time, etc.  Because I am on a low dose, she would like me to stay on it.

I'm thankful for everyone's support and I continue to think about all of those that I know who have been affected by this horrible disease and are fighting.  (If there is ANYTHING that I can do to help, please let me know!)  I believe!