I met with my oncologist today. I had started on my chemo meds a week ago on Sunday (taking 4 pills, twice daily - every day.) She asked how I was feeling; I feel much better now - starting to get energy back; in fact, I think there was two days of sleeping in and no napping. I also felt like I was getting my ideas/points across - that was an issue for me; I'd know what I would want to say but couldn't get it out. I asked Kurt how he felt that I was. He said that he thought things had gotten better. (I even asked my mom after my appointment and she said she thought since last Thursday she could see improvement.) This seemed like a positive with the oncologist - she said that the new meds react very quickly - which is a great sign! Kurt asked how long people typically take these pills and she said they take them until they no longer respond which on average is about 6 months. Then it sounds like I could start Ipi again; Kurt asked if I could do both at the same time and she indicated that it was currently in clinical trials.
I will have a PET scan in @2-3 weeks and another MRI in @8 weeks. I will see the oncologist in 4 weeks unless I am having any complications.
Last Thursday I met with the TV6 news for an interview on my last brain surgery. She told me she would contact me when they were going to air the story... I haven't heard from her yet but see that they posted an article about the news story on their website at http://www.uppermichiganssource.com/news/story.aspx?id=813664&fb_source=message#.UH2fmlHQjd0
(It didn't air on the 6 p.m. or 7 p.m. news tonight... maybe 11 p.m. or tomorrow?!?!?)
I continue to believe....
I believe all the way with you Jodi!!
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