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Tuesday, October 9, 2012

Seven Come Eleven... (or more) - 10/9/12

I decided to try to blog instead of having Kurt "guest blog".  I've been going through radiation treatments for the last several weeks.  I had an appointment yesterday with the radiation oncologist who asked me how I was feeling; I mentioned that while I knew what I wanted to say it wasn't always coming out.  The doctor asked if I wanted to go for an MRI as he was concerned that if I went through too much radiation it could do more damage to the good brain matter.

I also started the BRAF inhibitor chemo drug (Zelboraf) on Sunday - twice daily, four pills taken 12 hours apart.  (Knock on wood, I haven't felt anything from taking them....)

So, today we met with the radiation oncologist to discuss my MRI results.  He showed us comparisons from the MRI images a month ago vs. the MRI images yesterday ; where there were currently only 7 tumors a month ago, we lost count at 12 to 14.... and that's after radiation.  So, he is going to talk to my oncologist about what she wants to be the next steps (she was off today - she'll be back in the office tomorrow and hopefully we will hear)  I left there feeling nauseous, cried with Kurt, texted friends and family (didn't want to talk to people yet), took a nap, talked to my parents.  We haven't talked to the kids about it yet - but plan to tonight.

This doesn't mean that I am giving up hope or believing!  I will continue to fight... because those that love me and support me mean that much to me!!!

I also got a phone call that I will be interviewed by TV6 news on Thursday about the Brain Port surgery I had on August 8th - I have to contact my neurosurgeon's office to see if they still approve of me meeting with them with the NEW news.... I'll call tomorrow.  (I'll blog when/if I meet with them and know more of when it will air.)

(I asked Nathan today when he got home from school if my hair looked like Don King... he didn't know who Don King is - but I think it does!)

4 comments:

  1. Please keep being the inspiration you are. We Believe!
    Bonnie and Terry Popour

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  2. "Don't give up, don't ever give up." - Jimmy V.
    U are loved by many and an inspiration to everyone. :)

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  3. I wish I was even half the woman you are... You are simply amazing : ) Preston Koski's Mom

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